Adult patients with severe-to-profound hearing impairment : a clinical, register-based, and interview study
Author: Turunen-Taheri, Satu
Date: 2021-11-11
Location: Birkeaulan, Birke 1, Karolinska University Hospital, Huddinge
Time: 9.00
Department: Inst för klinisk vetenskap, intervention och teknik / Dept of Clinical Science, Intervention and Technology
View/ Open:
Thesis (1.008Mb)
Abstract
In Sweden, roughly 25,000 individuals in the adult population have severe-to-profound hearing impairment, a prevalence rate of 0.2-0.3%. This patient group often needs extended audiological rehabilitation. The general aim of the thesis was to explore and describe patients with severe-to-profound hearing loss and/or patients with dual sensory loss.
The specific focus studied was dual sensory loss in Paper I and Paper V, audiological rehabilitation in Papers I-V, cochlear implants (CI) in Paper III, and mental fatigue Paper IV. The five papers are based on data from the quality register for severe-to-profound hearing loss (Papers I-III), a pilot clinical study (Paper IV), and an interview study (Paper V).
Paper I compared patients with dual sensory loss to patients with severe-to-profound hearing loss only and found a significant negative effect on QoL parameters among the dual sensory loss group.
In Paper II, data on 4,286 patients with severe-to-profound hearing loss were studied. The results revealed that only 40.5% received extended rehabilitation. Furthermore, significantly more women than men received audiological rehabilitation. Hearing loss seemed to have a significantly more negative impact on daily life of women than of men. In particular, group rehabilitation and visits to a pedagogue seemed to have an important role in the experience of benefits in rehabilitation.
In Paper III comparisons with patients rehabilitated with or without CI were investigated. The study found that only 8.5% had CI, despite most fulfilled the criteria for CI. The various reasons were studied, and the most common were related to hearing (management with hearing aids) and unknown reasons for not receiving CI.
Paper IV indicated that most patients in the study population with severe mental fatigue had normal hearing or mild-to-moderate hearing loss, and severe mental fatigue was associated with severe tinnitus. Paper V demonstrated experiences of disabilities in daily life in patients with dual sensory loss. The results revealed that patients did not think of their dual sensory loss as a combination, but rather as separate disabilities. Isolation and the ability to control one’s own daily life emerged as the main themes.
In conclusion, patients with dual sensory loss seemed to have a higher risk of experiencing difficulties in health conditions than patients with severe-to-profound hearing loss only. Individuals with dual sensory loss experienced a lack of control and isolation. Hearing loss seemed to have a more negative impact on women’s daily lives. For patients with severe-to-profound hearing loss, it is of great importance to be able to participate in interdisciplinary rehabilitation program. There is a need to highlight mental fatigue to focus on implementing guidelines for intervention and treatment in patients with hearing loss and/or tinnitus.
The specific focus studied was dual sensory loss in Paper I and Paper V, audiological rehabilitation in Papers I-V, cochlear implants (CI) in Paper III, and mental fatigue Paper IV. The five papers are based on data from the quality register for severe-to-profound hearing loss (Papers I-III), a pilot clinical study (Paper IV), and an interview study (Paper V).
Paper I compared patients with dual sensory loss to patients with severe-to-profound hearing loss only and found a significant negative effect on QoL parameters among the dual sensory loss group.
In Paper II, data on 4,286 patients with severe-to-profound hearing loss were studied. The results revealed that only 40.5% received extended rehabilitation. Furthermore, significantly more women than men received audiological rehabilitation. Hearing loss seemed to have a significantly more negative impact on daily life of women than of men. In particular, group rehabilitation and visits to a pedagogue seemed to have an important role in the experience of benefits in rehabilitation.
In Paper III comparisons with patients rehabilitated with or without CI were investigated. The study found that only 8.5% had CI, despite most fulfilled the criteria for CI. The various reasons were studied, and the most common were related to hearing (management with hearing aids) and unknown reasons for not receiving CI.
Paper IV indicated that most patients in the study population with severe mental fatigue had normal hearing or mild-to-moderate hearing loss, and severe mental fatigue was associated with severe tinnitus. Paper V demonstrated experiences of disabilities in daily life in patients with dual sensory loss. The results revealed that patients did not think of their dual sensory loss as a combination, but rather as separate disabilities. Isolation and the ability to control one’s own daily life emerged as the main themes.
In conclusion, patients with dual sensory loss seemed to have a higher risk of experiencing difficulties in health conditions than patients with severe-to-profound hearing loss only. Individuals with dual sensory loss experienced a lack of control and isolation. Hearing loss seemed to have a more negative impact on women’s daily lives. For patients with severe-to-profound hearing loss, it is of great importance to be able to participate in interdisciplinary rehabilitation program. There is a need to highlight mental fatigue to focus on implementing guidelines for intervention and treatment in patients with hearing loss and/or tinnitus.
List of papers:
I. Turunen-Taheri S, Skagerstrand Å, Hellström S & Carlsson PI. (2017). Patients with severe-to-profound hearing impairment and simultaneous severe vision impairment: a quality-of-life study. Acta-Oto-Laryngologica. 137 (3), 279-285.
Fulltext (DOI)
Pubmed
View record in Web of Science®
II. Turunen-Taheri S, Carlsson PI, Johnson AC & Hellstrom S. (2019). Severe-to- profound hearing impairment: demographic data, gender differences and benefits of audiological rehabilitation. Disability and rehabilitation. 41 (23): 2766-74.
Fulltext (DOI)
Pubmed
View record in Web of Science®
III. Turunen-Taheri SK, Eden M, Hellstrom S & Carlsson PI. (2019). Rehabilitation of adult patients with severe-to-profound hearing impairment - why not cochlear implants? Acta Oto-Laryngologica. 139 (7): 604-11.
Fulltext (DOI)
Pubmed
View record in Web of Science®
IV. Turunen-Taheri S, Carlsson PI, Ternevall E & Hellström S. Mental fatigue in patients with hearing loss and/or tinnitus undergoing extended audiological rehabilitation – a pilot study. [Manuscript]
V. Turunen-Taheri S, Hagerman Sirelius A, Hellström S, Skjönsberg Å & Backenroth G. Combined severe-to-profound hearing and vision impairment – experiences of daily life and need of support, an interview study. [Manuscript]
I. Turunen-Taheri S, Skagerstrand Å, Hellström S & Carlsson PI. (2017). Patients with severe-to-profound hearing impairment and simultaneous severe vision impairment: a quality-of-life study. Acta-Oto-Laryngologica. 137 (3), 279-285.
Fulltext (DOI)
Pubmed
View record in Web of Science®
II. Turunen-Taheri S, Carlsson PI, Johnson AC & Hellstrom S. (2019). Severe-to- profound hearing impairment: demographic data, gender differences and benefits of audiological rehabilitation. Disability and rehabilitation. 41 (23): 2766-74.
Fulltext (DOI)
Pubmed
View record in Web of Science®
III. Turunen-Taheri SK, Eden M, Hellstrom S & Carlsson PI. (2019). Rehabilitation of adult patients with severe-to-profound hearing impairment - why not cochlear implants? Acta Oto-Laryngologica. 139 (7): 604-11.
Fulltext (DOI)
Pubmed
View record in Web of Science®
IV. Turunen-Taheri S, Carlsson PI, Ternevall E & Hellström S. Mental fatigue in patients with hearing loss and/or tinnitus undergoing extended audiological rehabilitation – a pilot study. [Manuscript]
V. Turunen-Taheri S, Hagerman Sirelius A, Hellström S, Skjönsberg Å & Backenroth G. Combined severe-to-profound hearing and vision impairment – experiences of daily life and need of support, an interview study. [Manuscript]
Institution: Karolinska Institutet
Supervisor: Hellström, Sten
Co-supervisor: Carlsson, Per-Inge
Issue date: 2021-10-20
Rights:
Publication year: 2021
ISBN: 978-91-8016-338-5
Statistics
Total Visits
Views | |
---|---|
Adult ... | 790 |
Total Visits Per Month
October 2023 | November 2023 | December 2023 | January 2024 | February 2024 | March 2024 | April 2024 | |
---|---|---|---|---|---|---|---|
Adult ... | 37 | 16 | 19 | 19 | 17 | 26 | 13 |
File Visits
Views | |
---|---|
Thesis_Satu_Turunen-Taheri.pdf | 283 |
Top country views
Views | |
---|---|
Sweden | 203 |
United States | 142 |
Ireland | 89 |
United Kingdom | 57 |
India | 44 |
China | 24 |
Germany | 23 |
South Korea | 19 |
Australia | 17 |
Finland | 13 |
Top cities views
Views | |
---|---|
Dublin | 79 |
Stockholm | 20 |
Linköping | 17 |
Sydney | 15 |
Umeå | 15 |
Uppsala | 15 |
Ashburn | 13 |
Bromma | 13 |
Hangzhou | 12 |
Katrineholm | 11 |